Endometriosis Stigma and Mental Wellbeing

Our current understanding of endometriosis has benefitted from innovative research and public and policy efforts that aid funding. However, more work is necessary; endometriosis is a disease that many still misunderstand due to various stigmas. It is vital to continue to listen to the experiences of patients for a better understanding of the implications of endometriosis. This is where voluntary research participation comes in. Here is more information about the Endometriosis Stigma and Mental Wellbeing study.

Endometriosis Stigma and Mental Wellbeing study

The Endometriosis Foundation of America (EndoFound) regularly lists opportunities for patients to take part in endometriosis research. One such opportunity is the new “Endometriosis Stigma and Mental Health Study”. 

This study is conducted by the Department of Clinical Psychology at The New School and approved by the Biomedical Research Alliance of New York (BRANY) and The New School for Social Research (protocol #22-201-1244). 

Why is this study important?

Endometriosis takes a huge toll on a woman’s physical, professional, personal, and emotional well-being. The confirmation of an endometriosis diagnosis, while giving a sense of relief, can also cause several emotional upheavals

Symptoms of endometriosis can be highly debilitating. Many patients face the arduous task of developing emotional resilience. This can take a toll on their mental and physical health.

There have been several studies on the impact of endometriosis on women’s lives and the reasons for delayed diagnosis. However, studies on endometriosis-related stigma have been far and few in between. A proper understanding of the stigma individuals with endometriosis face is essential for proper disease education and myth-busting.

The society actively discourages discussing aspects of menstruation given the stigma around the topic. For instance, many women still report that their symptoms are dismissed or trivialized when they complain of pain. As a result, many suffer in silence, which can contribute to suboptimal wellbeing and delayed diagnosis.

Research such as the Endometriosis Stigma and Mental Health study help in understanding how society has progressed with respect to disease education and identifies areas for focus. It helps determine how large-scale social influences impact patients and has the potential to inform advocacy efforts and policy changes.

Eligibility requirements for the study

The study requires all participants to meet the following eligibility criteria:

  • Be at least 18 years old
  • Have received a diagnosis of endometriosis
  • Have been assigned female sex at birth
  • Be located in the U.S.

How to participate?

The Endometriosis Stigma and Mental Health Study
Endometriosis Stigma and Mental Wellbeing Study

The Endometriosis Stigma and Mental Health Study is a short online survey. It includes a questionnaire on various aspects of endometriosis, stigma, and mental well-being.

You can assess the survey at the following link: Users can also point their smartphones or tablets at the QR code in the adjoining image to directly access the survey.

One in 20 participants also stands a chance to win a $50 Amazon gift card.

Have you filled out the survey yet? Was it difficult? Please share your opinion by leaving a comment on our post on Facebook or Instagram.

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