Different Types of Pain in Endometriosis

Endometriosis is characterized by pain that can vary in type and severity. Here is some more information about pain in endometriosis.

Common types of endometriosis pain

Patients with endometriosis can experience pain before, during, or after menstruation.

Types of pain include pelvic pain, abdominal pain, joint pain, leg pain, pain during intercourse, and pain during urination.

Some patients who have undergone endometriosis surgery may also experience shoulder pain.

The site and nature of pain can vary from one individual to another.

Why is pain a key factor?

According to Dr. Seckin, pain is the main way of knowing endometriosis is present. Patients can describe their pain, its duration, and its site, which can provide vital diagnostic clues. For instance, pain in the bowels, during intercourse, and orgasms are usually indicative of deep infiltrating endometriosis (DIE).

What causes endometriosis pain?

The exact mechanism of pain development in endometriosis is not fully understood. However, research suggests that endometriosis can result in excess production of prostaglandins that cause contractions and cramping.

Apart from endometriosis, other related conditions such as adenomyosis, adhesions, and uterine fibroids can also cause pain that is similar to endometriosis.

What is period pain and should I be concerned?

Period pain or dysmenorrhea is one of the six cardinal symptoms of endometriosis and can be extremely debilitating.

Period pain can persist even after menstruation, and it does not generally respond to painkillers or birth control pills. 

While it is common to have some pain and cramping during periods, debilitating pain should never be ignored. Do not heed ill-informed advice that heavy period pain and bleeding are normal just because it happened before in the family and consult your doctor at the earliest opportunity.

I am experiencing severe abdominal pain. Could this be endometriosis?

Endometriosis can manifest as chronic pelvic pain.

Patients usually experience the most severe pain in cases of DIE and ovarian endometrioma coinciding with the onset of menstruation.

How do I describe my pain to my doctor?

Be as descriptive as possible while talking to your doctor about the pain you are experiencing. Be sure to include valuable information such as the duration, site of occurrence, and source of your pain, as well as any environmental factors that may trigger it. 

You should also inform your doctor If you have been experiencing pain during intercourse, passing of urine, or other events such as constipation, diarrhea, or shortness of breath.

If these symptoms coincide with the onset of periods, they may be indicative of endometriosis.

You could also keep a personal pain diary in which you include information about your periods, the site, extent, and description of your pain. You can also add information about your medications and other symptoms. This pain diary can be a valuable resource when describing your pain to your doctor.

What could be the reason for irradiating pain in my legs?

Endometriosis lesions can put pressure on nerves such as the sciatic and pudendal nerves and cause. Pain in the lower back, hips, and surrounding areas that radiate towards the heel. Sciatic endometriosis can also cause “foot drop” or the inability to lift the front of your foot.

Why does shoulder pain occur after surgery?

About 35 to 80% of patients complain of shoulder pain following laparoscopic excision surgery. This is usually due to the CO2 gas used during the procedure for better visibility.

Dr. Seckin’s secondary surgical pause approach ensures the identification of clots that can also cause pain and reduced gas accumulation.

How to cope with the pain?

Although some methods can be used to help reduce or manage endometriosis-associated pain such as consuming an anti-inflammatory diet, engaging in mild exercise, and using techniques such as yoga and mindfulness, the complete alleviation of pain symptoms may only be achieved through laparoscopic deep excision surgery.

Please do not hesitate to share your experience with pain by leaving a comment on our post on Facebook or Instagram if you wish.